I (Aaron) finally joined Pinterest today. I spent too much time going down the rabbit hole, but it also paid immediate dividends by giving me a couple of good ideas to do with the kids. We've never done much of anything to celebrate New Year's but tonight we started a new tradition of the kids answering interview questions, below. I also hung mini donuts on a string for the kids to eat without using their hands. Do I know how to party or what?
Thursday, December 31, 2015
Monday, November 16, 2015
Dance
Henry Swimming
6 months after radiation
I recently went to the neurosurgeon for my 6 month post radiation visit, which was 1 year past surgery. Before I went and saw the doctor, I needed a brain MRI. Let me tell you, I am very sick of brain MRIs!
I did all the usual, checked in, got into scrubs, got an IV, then I was shoved in the tube, again. I kept thinking about how many times I have done this before (5 or 6) and how much has changed since then, and how much depends on the scan. It's something I don't like dwelling on, and usually I can be pretty practical, but when you're stuck with your thoughts for an hour, well, it can get to you.
Luckily, my meeting with the nurse practioner in neurosurgery was right afterward. I headed up and was promptly seen. Normally at this stage of the game, they are happy if everything looks the same, stable and good. My tumor was actually showing signs of involution and the middle had a little more loculations and less intense signal than before. It is a really good sign!
I left the office feeling hopeful after a pretty emotional day.
Later, I went to the audiologist to recheck my hearing. I felt like my hearing aid wasn't working as well as before. Well, I was right, my hearing is worse, much worse. It is gone, caput, fineto! So long right ear hearing! There is now no hope for sound localization for me. It's taken me about a week to accept it, but I have. I know this whole journey could have been much much worse, but I still miss my hearing (a lot).
But, I bit the bullet and ordered the cross cover hearing aids. This is the one that takes sound from the right ear and puts it in my left. I haven't gotten it yet. Since I have been waiting, I went to a church function and felt the whole implications of my hearing impairment. I was working so hard just to concentrate on who was speaking and not on the background noise. I missed a lot of the speech, especially if they were on my right. There was even one time I was non-shallantly cupping my left ear so I could hear more. I felt like I couldn't relax. I had to keep my guard up and constantly be aware. Aaron had a really good time, but I didn't. I left the night feeling....so this is what it's like. Not happy with reality.
Well, really, things will get better with the cross cover hearing aids. Hearing shouldn't be a problem, but the localization will, and forever will be gone. When people in a group are talking, it is hard for me to know which one it is, when my kid drops a game piece on the floor I can't find it, when my kid runs away from me in a store....
Ok, I'm wading in my misery a little. I need to stop it.
Twice this past week I have been contacted because someone knows someone who has the diagnosis of acoustic neuroma. I have been happy to talk with both of these people, and if I can ease their transition to this new diagnosis and make things a little less scary, then it is good. I guess I just should remember the good.
I did all the usual, checked in, got into scrubs, got an IV, then I was shoved in the tube, again. I kept thinking about how many times I have done this before (5 or 6) and how much has changed since then, and how much depends on the scan. It's something I don't like dwelling on, and usually I can be pretty practical, but when you're stuck with your thoughts for an hour, well, it can get to you.
Luckily, my meeting with the nurse practioner in neurosurgery was right afterward. I headed up and was promptly seen. Normally at this stage of the game, they are happy if everything looks the same, stable and good. My tumor was actually showing signs of involution and the middle had a little more loculations and less intense signal than before. It is a really good sign!
I left the office feeling hopeful after a pretty emotional day.
Later, I went to the audiologist to recheck my hearing. I felt like my hearing aid wasn't working as well as before. Well, I was right, my hearing is worse, much worse. It is gone, caput, fineto! So long right ear hearing! There is now no hope for sound localization for me. It's taken me about a week to accept it, but I have. I know this whole journey could have been much much worse, but I still miss my hearing (a lot).
But, I bit the bullet and ordered the cross cover hearing aids. This is the one that takes sound from the right ear and puts it in my left. I haven't gotten it yet. Since I have been waiting, I went to a church function and felt the whole implications of my hearing impairment. I was working so hard just to concentrate on who was speaking and not on the background noise. I missed a lot of the speech, especially if they were on my right. There was even one time I was non-shallantly cupping my left ear so I could hear more. I felt like I couldn't relax. I had to keep my guard up and constantly be aware. Aaron had a really good time, but I didn't. I left the night feeling....so this is what it's like. Not happy with reality.
Well, really, things will get better with the cross cover hearing aids. Hearing shouldn't be a problem, but the localization will, and forever will be gone. When people in a group are talking, it is hard for me to know which one it is, when my kid drops a game piece on the floor I can't find it, when my kid runs away from me in a store....
Ok, I'm wading in my misery a little. I need to stop it.
Twice this past week I have been contacted because someone knows someone who has the diagnosis of acoustic neuroma. I have been happy to talk with both of these people, and if I can ease their transition to this new diagnosis and make things a little less scary, then it is good. I guess I just should remember the good.
Sunday, November 8, 2015
Franny's story
Frances just recently got inspired. Renae gave us a pack of blank books that we finally opened and Franny wanted to write a story. I went to work as she was writing it and when I came home, it was all finished. I loved it!
Isn't that about the sweetest story from a 3 year old? I thought you all would like it.
trying to sleep?" said Daddy. Frances said "What? What is this? Is this a volcano?" And the papa said, "yes." The End |
Isn't that about the sweetest story from a 3 year old? I thought you all would like it.
Saturday, November 7, 2015
Henry's birthday
Since Henry's birthday is on Halloween, it is always extra special on that day. I don't know why, but both Aaron and Henry wanted his party on his actual birthday. I had to work until 12:30 so it was a tight schedule, but Aaron did all the research and preparing and made things happen. Scrambling for a party venue, we found a great store in Linden Hills called Heartfelt. I recommend this to anyone without reservations! She had a premade birthday party where they would make swords, have a scavenger hunt and shoot crossbows. Not this is totally up every 8 year old boys alley, but it was even more so for my Hanky.
I really think this was the perfect place for the party. All of Henry's friends are so well behaved and creative, everything went without a hitch. They started the afternoon with a little discussion on what was going to happen and the different steps they would take. I was still driving during this time, but apparently the parents were a little rowdy and needed a talking to. I'm a little glad I missed that point When I got there, all the kids were paying attention and EVERYONE was quiet.
The first thing they did was decorate their swords. It was done with a waxy crayon tip thing that also had some metallic on in. My personal favorite was the Griffindor sword that one of Henrys friends make. Every sword looked great and so unique.
Once they colored the swords, they got a leather hilt on them and jewels were placed on the handle.
After a quick snack, it was time for a treasure hunt. There were small jewels hidden in the store for all the kids. They got baskets and each had to find 7 jewels.
Here you can see all the great swords they made.
After some face painting, it was time to test out the swords. I am happy to report that no one got injured and everyone had fun.
Next they fired the cross bow into a fake tree where holes are present. Everyone waited so patiently for a turn, and when Frances actually got her arrow into the hole, all of Henry's friends clapped.. What a great group of friends!
With Henry getting another year older, it makes me even prouder to watch what he is becoming. He is a very kind, sensitive and caring young man. He does great in school, loves sports and even loves crafting with his mom. I mean, what more can I ask for? Nothing, he is the best!
I really think this was the perfect place for the party. All of Henry's friends are so well behaved and creative, everything went without a hitch. They started the afternoon with a little discussion on what was going to happen and the different steps they would take. I was still driving during this time, but apparently the parents were a little rowdy and needed a talking to. I'm a little glad I missed that point When I got there, all the kids were paying attention and EVERYONE was quiet.
The first thing they did was decorate their swords. It was done with a waxy crayon tip thing that also had some metallic on in. My personal favorite was the Griffindor sword that one of Henrys friends make. Every sword looked great and so unique.
Once they colored the swords, they got a leather hilt on them and jewels were placed on the handle.
After a quick snack, it was time for a treasure hunt. There were small jewels hidden in the store for all the kids. They got baskets and each had to find 7 jewels.
Here you can see all the great swords they made.
After some face painting, it was time to test out the swords. I am happy to report that no one got injured and everyone had fun.
Next they fired the cross bow into a fake tree where holes are present. Everyone waited so patiently for a turn, and when Frances actually got her arrow into the hole, all of Henry's friends clapped.. What a great group of friends!
Friday, November 6, 2015
Goodbye Pacis
I wanted Franny to understand this was 100% the end, and also not allow the possibility of us giving in, so I chopped up her pacis in front of her and threw them away. She didn't care at all as I did it. She didn't take a nap that day, which was not super unusual, though she was taking naps more often than not at that point. Bed time was of course a little difficult. She moaned the word, "paci" over and over, but almost in mourning more than as a demand. She cuddled between Laura and me on the couch and moaned pitifully but got to sleep fairly quickly. I carried her to bed after awhile, and we had no idea what to expect for the night. She made it to 3:00 before she woke up extremely upset in that out-of-it way. Laura tried to console her for a long time without much luck. Eventually Franny said only watching a show would calm her down. Sounded like a bad idea to me, but Laura turned on the iPad with her around 3:30. Franny did calm down and went back to sleep after they watched for about half an hour. Was a good idea after all. The next night it was slightly difficult to get her to sleep, but she slept all night long with no problem. The next night was a little easier, and then it was pretty much a non-issue at night.
Unfortunately though, naps have pretty much gone out the window without pacis. I'd be OK with this if it weren't for the fact that she seems to still need naps. She had very few meltdowns before, but since the naps have stopped, they've become common. It's been two weeks without a paci now, and she's taken one real nap, with a couple of short snoozes in the car, in that time. Still adjusting to a new sleep schedule. Mostly she's still sweet Franny, just with some bonus fits of exhaustion fueled unreasonableness and tears. Time keeps marching on.
Tuesday, November 3, 2015
Halloween 2015
Princess Elsa & MegaMan got their trick-or-treat on in Hopkins with Dad, Grammy, & Poppy. (Princess Elsa kept her face paint on from MegaMan's birthday party that afternoon.) So much excitement and cuteness, such as Franny starting to yell "trick or treat!" from the sidewalk as she runs up to a door.
Wednesday, October 7, 2015
Screen Printing
Aaron's big contribution this week was screen printing. Aaron screen printed our wedding invitations, but this has been on the backer burner, oh for about 10 years or so. Aaron bought some light activated screen emulsion off the Internet. He thought they came with screens, but they did not.
So we all went to the craft store together. Man, the kids love the craft store. I do too. They rows are filled with endless potential. Well, we did not leave the store with just a screen, but that's okay.
The kids chose their own designs, Aaron reconfigured a KLF image and then he created a Solyntjes-Stilley emblem for me using our wedding invitation as a template.
As you can see, Aaron's turned out pretty good. Mine did too. Both Henry's and Frances' had some areas where the paint did not go through. This could have been because they didn't push hard enough with the squeegee or that it wasn't a good print to begin with.
Evan with the sparse areas, the kids are happy with them. I am too. This is good first attempt. Aaron has learned some things and next time will be even better.
Sometime in the future I envision my whole family running a race with matching track suits and shirts with the Solyntjes-Stilley logo. I just have to find the right race and convince Henry it would be fun. I just accidentally deleted the S-S logo. Maybe it is destiny. I guess I'll wait to show everyone until we run our race.
In other news, we have a new addition to the household. I have been pretty bad with taking care of plants, but this last year, I have kept TWO plants alive! I thought this called for a celebration. Franny and I went to a great indoor plant place and bought a new succulent. It's larger than my other two, but maybe that makes it even harder to kill, right? We'll see.
So we all went to the craft store together. Man, the kids love the craft store. I do too. They rows are filled with endless potential. Well, we did not leave the store with just a screen, but that's okay.
The kids chose their own designs, Aaron reconfigured a KLF image and then he created a Solyntjes-Stilley emblem for me using our wedding invitation as a template.
As you can see, Aaron's turned out pretty good. Mine did too. Both Henry's and Frances' had some areas where the paint did not go through. This could have been because they didn't push hard enough with the squeegee or that it wasn't a good print to begin with.
Evan with the sparse areas, the kids are happy with them. I am too. This is good first attempt. Aaron has learned some things and next time will be even better.
Sometime in the future I envision my whole family running a race with matching track suits and shirts with the Solyntjes-Stilley logo. I just have to find the right race and convince Henry it would be fun. I just accidentally deleted the S-S logo. Maybe it is destiny. I guess I'll wait to show everyone until we run our race.
In other news, we have a new addition to the household. I have been pretty bad with taking care of plants, but this last year, I have kept TWO plants alive! I thought this called for a celebration. Franny and I went to a great indoor plant place and bought a new succulent. It's larger than my other two, but maybe that makes it even harder to kill, right? We'll see.
Saturday, October 3, 2015
Creative Week
Since last week we have been trying to be more creative, and you know what? It's working. It started with apple pie. We use this crank that peels, slices and cores all at once. We only use it about once a year, but when we do, it is great. Actually, I should probably use it more and Henry did really love do it it.
Frances could have done without the whole ordeal, including the apple pie. I guess she thought it looked weird or something. More for us! The apple pie was gone within two days and the apples we picked were gone within a week. By the way, I need to buy more apples.
I have read two chapters of The Artists Way for Parents. Aaron has read the preface. He started asking the kids about their day right before bedtime. I was all like" You read the book" and he was all like "just the beginning."
I let Aaron design the pie and can you tell what he wrote? I didn't think so. Well, it is "equinox" because that is when we made it.
The next creative adventure occurred because of Henry's open house at school. His teacher mentioned she needed some bags for everyone to put their spelling words into. Because I work full time and am not an extrovert, it has been hard in the past to get involved. This task was right up my alley! I spoke to his teacher that night and pledged as many bags as I could sew over the weekend.
Henry and Frances were excited to help me. I let Henry drive the sewing machine himself.. He loved it. Me, being a little over protective was telling him all the ways he needed to be careful. He told me "I never knew sewing could be so dangerous." Yes Henry, yes it can be. Frances seems to have no concern about the really pointy thing in the middle of the machine. Because of that, she sat on my lap and just "helped" me.
I love the fact that they are so interested. I hope I can keep their sewing interests going. In the end, I made 14 bags over the weekend. I was only 4 bags short, so we quickly made those on Monday. Henry's teacher said that he was bringing a surprise and I think the kids all loved the different bags to put the spelling words. I got a great little thank you card and all the kids signed it. I think I will try to push out of my comfort zone and help a little more at school. The rewards are high.
Last week Farmer Laura came to deliver our vegetables and asked when we were coming to the farm. This was the last week for delivery so time was running out. We had so much fun last year and didn't want to loose the opportunity, so we came the next weekend. I'm glad we did because the family had a blast (although Frances got a little tired of it)
We ended picking lots. With all the stuff we picked, we made: homemade pasta sauce (thanks Phil), pesto sauce, veggie fries (kohlrabi and dichon radishes) and just ate lots of fresh carrots. The veggie fries were okay, but mostly because I dipped them in ketchup to mask their flavor.
We also picked a ton of pumpkins and butternut squashes, some for baking and some for carving. I can wait to make it all: pumpkin cookies, pumpkin bread, pumpkin pancakes, pumpkin pie....
I made the mistake of letting Frances wear her favorite shoes, her sandals. Because of this, I ended up carrying her the last have of our journey. As a parent, it is hard to decided what to let go and what to enforce. I guess I made the wrong choice, but now because of it have strong forearms!
I think we are loving trying to be more creative. Aaron even has our next event planned out...stay tuned.
Frances could have done without the whole ordeal, including the apple pie. I guess she thought it looked weird or something. More for us! The apple pie was gone within two days and the apples we picked were gone within a week. By the way, I need to buy more apples.
I have read two chapters of The Artists Way for Parents. Aaron has read the preface. He started asking the kids about their day right before bedtime. I was all like" You read the book" and he was all like "just the beginning."
Add caption |
The next creative adventure occurred because of Henry's open house at school. His teacher mentioned she needed some bags for everyone to put their spelling words into. Because I work full time and am not an extrovert, it has been hard in the past to get involved. This task was right up my alley! I spoke to his teacher that night and pledged as many bags as I could sew over the weekend.
Henry and Frances were excited to help me. I let Henry drive the sewing machine himself.. He loved it. Me, being a little over protective was telling him all the ways he needed to be careful. He told me "I never knew sewing could be so dangerous." Yes Henry, yes it can be. Frances seems to have no concern about the really pointy thing in the middle of the machine. Because of that, she sat on my lap and just "helped" me.
I love the fact that they are so interested. I hope I can keep their sewing interests going. In the end, I made 14 bags over the weekend. I was only 4 bags short, so we quickly made those on Monday. Henry's teacher said that he was bringing a surprise and I think the kids all loved the different bags to put the spelling words. I got a great little thank you card and all the kids signed it. I think I will try to push out of my comfort zone and help a little more at school. The rewards are high.
Last week Farmer Laura came to deliver our vegetables and asked when we were coming to the farm. This was the last week for delivery so time was running out. We had so much fun last year and didn't want to loose the opportunity, so we came the next weekend. I'm glad we did because the family had a blast (although Frances got a little tired of it)
We ended picking lots. With all the stuff we picked, we made: homemade pasta sauce (thanks Phil), pesto sauce, veggie fries (kohlrabi and dichon radishes) and just ate lots of fresh carrots. The veggie fries were okay, but mostly because I dipped them in ketchup to mask their flavor.
We also picked a ton of pumpkins and butternut squashes, some for baking and some for carving. I can wait to make it all: pumpkin cookies, pumpkin bread, pumpkin pancakes, pumpkin pie....
I made the mistake of letting Frances wear her favorite shoes, her sandals. Because of this, I ended up carrying her the last have of our journey. As a parent, it is hard to decided what to let go and what to enforce. I guess I made the wrong choice, but now because of it have strong forearms!
I think we are loving trying to be more creative. Aaron even has our next event planned out...stay tuned.
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